On the national hemophilia day, April 17, we celebrate this campaign that encourage everyone to wear red that day, take a picture of themselves and post it on social media with the hashtag #DeRojoPorLaHemofilia. This camping has the main purpose to create interest in this rare bleeding disorder. For the past 3 years we have received a huge amount of support with the pictures and donations on that day.
APH is committed to encourage positive changes towards the bleeding disorders community in Puerto Rico. Our Board members have met legislators (From the House and Senate of P.R.) and government agencies directors with the purpose of advocating for our patients and their rights. It’s our duty and responsibility to promote changes that results in better healthcare services and an overall superior quality of life. IF you want to become an advocate for this community and wish to join us in our efforts please email us!
Educating in a health fair
Advocating in the Health Commission of the House of Representatives of P.R.
Meeting with United Way from Puerto Rico and the Hemophilia Federation of America