Who We Are

If you have a bleeding disorder, your blood does not clot properly. This could be due to having no or a decreased amount a protein called a clotting factor. Bleeding disorders can also be caused by a platelet defect, either a lack of platelets or a problem that causes your platelets to not “stick” together or to the injured blood vessel properly.

Hemophilia is a bleeding disorder that affects mostly males, as it is an X chromosome linked condition. Hemophilia affects 1 in 5,000 male births in the U.S. and approximately 400 babies are born with hemophilia each year. 400,000 people worldwide are living with hemophilia and about 20,000 are living with it in the United States alone. All races and economic groups are affected equally. People with hemophilia who have access to factor replacement therapy have a normal life expectancy.

No. Bleeding disorders are usually hereditary and the patients are born with it.

APH was founded on November 15, 1999. We are celebrating 25 years of service!

We serve primarily Hemophilia and others bleeding disorders patients, their family members and caregivers. Also, we serve the general community with education regarding these bleeding conditions.

Yes, our membership mainly includes patients, caregivers and healthcare professionals but also, we embrace people that might not be directly related to bleeding disorders that want to educate themselves and become an ally to the APH mission.

Fill our form on our Get Connected page. It is as simple as that.

Yes, we don’t charge any subscription fee nor do we charge for participating in of our educational programs.

We offer Educational programs, webinars, family events such as camps, printed literature, access to our assistance patients’ programs, representation in advocacy efforts, access to our private Facebook group, become part of the APH family and much more.