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Who We Are

Frequent Questions

Have you ever had a question and didn’t know where to find the answer? If so, you’ve come to the right place.

This section is a compilation of answers to the questions most commonly asked by our constituents. Just start by following one of the links below. If you can’t find the question you wanted to ask, don’t hesitate to contact us.

  1. If you have a bleeding disorder, your blood does not clot properly. This could be due to having no or a decreased amount a protein called a clotting factor. Bleeding disorders can also be caused by a platelet defect, either a lack of platelets or a problem that causes your platelets to not “stick” together or to the injured blood vessel properly.

  2. Hemophilia is a bleeding disorder that affects mostly males, as it is an X chromosome linked condition. Hemophilia affects 1 in 5,000 male births in the U.S. and approximately 400 babies are born with hemophilia each year. 400,000 people worldwide are living with hemophilia and about 20,000 are living with it in the United States alone. All races and economic groups are affected equally. People with hemophilia who have access to factor replacement therapy have a normal life expectancy.

  3. It is contagious?

    No. Bleeding disorders are usually hereditary and the patients are born with it.

  4. When you were founded?

    APH was founded in 1999 so we have been active for 21 years now.

  5. Who does this organization serve?

    We serve primarily Hemophilia and others bleeding disorders patients, their family members and caregivers. Also, we serve the general community with education regarding these bleeding conditions.

  6. Can I join even if I don’t have a bleeding disorder?

    Yes, our membership mainly includes patients, caregivers and healthcare professionals but also, we embrace people that might not be directly related to bleeding disorders that want to educate themselves and become an ally to the APH mission.

  7. Fill our form on our Get Connected page. It is as simple as that.

  8. Is it free?

    Yes, we don’t charge any subscription fee nor do we charge for participating in any of our educational programs.

  9. What are the benefits of joining?

    We offer Educational programs, webinars, family events such as camps, printed literature, access to our assistance patients’ programs, representation in advocacy efforts, access to our Facebook group, become part of the APH family and much more.

Nuestro impacto en el año

  • Horas de voluntariado

    1,000+

  • Dinero recaudado

    $50,000+

  • Participación a los programas

    150+

© 2021 Asociación Puertorriqueña de Hemofilia y Condiciones de Sangrado

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