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Día de Abogacía 2021

El liderato de la Asociación Puertorriqueña de Hemofilia y Condiciones de Sangrado, junto a miembros de la comunidad se dieron cita en el Capitolio para abogar por los derechos y necesidades de nuestros pacientes. El pasado 18 de agosto de 2021 se llevó a cabo el primer “Día de Abogacía” con el apoyo de la National Hemophilia Foundation. Ese día, logramos reunirnos con varios senadores y representantes con el fin de presentar nuestras historias, peticiones y las barreras de cuidado médico que cada día enfrentamos en la isla.  

Agradecemos grandemente por la oportunidad a la Representante Yashira Lebrón; a la Senadora Marissita Jiménez; al Senador Gregorio Matías; a la Representante Lisie J. Burgos y a la Comisión de bienestar y personas con impedimentos de la Cámara. Al igual agradecemos a la Dra. Leslie Soto y a la enfermera Michelle Guzmán, del HTC, por haber sido parte de los esfuerzos de APH.

Por otro lado, agradecemos a nuestros/as pacientes y a sus familiares que dijeron presente para narrar sus historias de primera mano, lo cual es un gesto de valentía y empoderamiento.

Luego de la jornada de reuniones, la Junta y el Director Ejecutivo de APH participaron de una reunión especial con Katie Cooper y Nathan Schaefer de NHF, aprovechando su visita a la isla. Sin duda alguna fue un día de gran provecho para APH y para toda la comunidad de condiciones de sangrado.

Recuerden, que cada uno de ustedes puede sumarse a nuestros esfuerzos y abogar haciéndose parte de este proceso político. Asistiendo a las oficinas y escribiendo a sus legisladores para narrar sus historias y exponer sus necesidades. Es sumamente necesario, ahora más que nunca, alzar nuestras voces para dar continuidad y promover mejores condiciones para todos y todas en la isla.

Confiamos que este primer “Día de Abogacía” sea un evento anual, para así mantener continuamente nuestro interés e iniciativas en la gestión legislativa. 

Día de Abogacía 2021

#DeRojoPorLaHemofilia

En el Día Mundial de la Hemofilia, 17 de abril, celebramos esta campaña la cual invita a todos a vestirse de rojo ese día, tomarse una foto y publicarla en redes sociales con el “hashtag” #DeRojoPorLaHemofilia. Esta campaña tiene como propósito crear interés en esta condición de sangrado.

En el 2021 logramos vender cientos de camisas rojas en P.R. y en E.E.U.U. Logramos que el Gobierno de Puerto Rico reconociera este día iluminando La Fortaleza esa noche. ¡Todo un éxito!

Vísita nuestra páagina de Facebook para que veas todas las fotos.

#DEROJOPORLAHEMOFILIA 2021

Abogacía

APH se compromete a promover cambios positivos para la comunidad de condiciones de sangrado en Puerto Rico. Los miembros de nuestra Junta Directiva se han reunido con legisladores (Cámara y Senado de P.R.) y directores de agencias gubernamentales con el propósito de abogar por nuestros pacientes y sus derechos. Es nuestro deber y responsabilidad promover cambios que resulten en mejores servicios de atención médica y una calidad de vida superior. ¡Si desea convertirse en un defensor de esta comunidad y desea unirse a nosotros en nuestros esfuerzos, envíen un email!

  • Educando en una feria de salud
    Educando en una feria de salud
  • Abogando en la Comisión de Salud de la Cámara de Representantes de P.R.
    Abogando en la Comisión de Salud de la Cámara de Representantes de P.R.
  • Reunidos con United Way de Puerto Rico y la Hemophilia Federation of America
    Reunidos con United Way de Puerto Rico y la Hemophilia Federation of America

Nuestro impacto en el año

  • 40+

  • Horas de voluntariado

    1,000+

  • Dinero recaudado

    $50,000+

  • Participación a los programas

    150+

© 2022 Asociación Puertorriqueña de Hemofilia y Condiciones de Sangrado
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