Skip to main content

Lo que hacemos

EMPODERADAS: Comité de Mujeres

Desde el 2021 varias mujeres pacientes, portadoras y cuidadoras de pacientes con condiciones de sangrado, notaron la necesidad de organizarse. Así, nace el Comité de Mujeres Empoderadas de la Asociación Puertorriqueña de Hemofilia y Condiciones de Sangrado. Este grupo de mujeres para mujeres, dirige programas y eventos para esta población dentro de APH. ¿Quieres ser parte de Empoderadas? ¡Escríbenos! 

Empoderadas 2024: El Evento

El 12 y 13 de octubre llevaremos a cabo el 2do evento Empoderadas en Isla Verde, Puerto Rico. Este evento es exclusivo para mujeres que sean pacientes, portadoras o cuidadoras de pacientes afectados por condiciones de sangrado. ¡Presiona el botón y mira todos los detalles! 

¡Empoderadas en acción!
Go to Previous SlideGo to Next Slide

Recursos:

Compartimos algunas organizaciones nacionales que ofrecen apoyo a las mujeres con trastornos hemorrágicos:

  1. Fundación Nacional de Trastornos Hemorrágicos (National Bleeding Disorders Foundation, NBDF): Esta organización proporciona recursos y apoyo a personas con hemofilia y otros trastornos hemorrágicos. Tienen programas específicos para mujeres, como el sitio web "Victory for Women".
  2. Hemophilia Federation of America (HFA): Provee recursos como "Learning Central" para educar sobre varios temas incluyendo salud y bienestar de la mujer.
  3. Oficina para la Salud de la Mujer (Office on Women 's Health, OWH): Parte del Departamento de Salud y Servicios Humanos de EE. UU., ofrece información y recursos sobre trastornos hemorrágicos en mujeres, incluyendo líneas de ayuda y materiales educativos.
  4. Centros para el Control y la Prevención de Enfermedades (CDC): Los CDC tienen en su sitio web una sección dedicada a los trastornos hemorrágicos en mujeres, proporcionando información sobre síntomas, diagnóstico y tratamiento.
  5. Better You Know: Un sitio web creado por la NBDF en colaboración con los CDC, diseñado para ayudar a las personas a identificar si podrían tener un trastorno hemorrágico y proporcionarles recursos y herramientas para buscar atención médica. Better You Know

En Puerto Rico contamos con el Centro de Tratamiento de Hemofilia / Hemophilia Treatment Center (HTC); en el Hospital Pediátrico Universitario del Centro Médico en San Juan; para el manejo de los trastornos hemorrágicos en menores de 21 años.

Tel. del HTC 787-777-3201 (Extensión: 7215)
Tel. del Cuadro del Hospital 787-474-0333  
 


 

Misión:

Brindar un grupo de apoyo en el cual la comprensión, solidaridad y conocimiento se entrelazan para empoderar y educar a mujeres pacientes, cuidadoras y familiares impactadas con un diagnóstico de condición de sangrado. Promover conciencia en que las mujeres también son afectadas, enfocándonos en el manejo de su condición, identificando las necesidades de cada mujer en vías de promover una vida plena.

Visión: 

Crear una comunidad solidaria en la que cada mujer pueda abogar por sus derechos. Lograr que las pacientes diagnosticadas obtengan una atención óptima en su cuidado médico, fisico, emocional y social. Tener un espacio donde nuestras pacientes tengan un papel de defensoras para mejorar su calidad de vida. Nos visualizamos como un faro de esperanza y empoderamiento para las mujeres afectadas, así como para sus cuidadoras y familiares.

Contáctanos: info@hemofiliapr.org 

Anthony Llanes: Director Ejecutivo 787-647-7985

allanes@hemofiliapr.org

Fabiola Danastorg: Coordinadora del Comité

fdanastorg@hemofiliapr.org

Mariel Laureano: Presidenta de la Junta de APH

mlaureano@hemofiliapr.org

El Comité de Mujeres Empoderadas se reúne virtualmente los miércoles en la noche. Si deseas ser parte de nosotras, comunícate. 

Sigue a las redes sociales de la Asociación Puertorriqueña de Hemofilia y Condiciones de Sangrado para conocer de los eventos del Comité y demás programas de APH:


 

Nuestro impacto en el año

  • 65+

  • Horas de voluntariado

    1,500+

  • Dinero recaudado

    $100,000+

  • Participación a los programas

    150+

© 2024 Asociación Puertorriqueña de Hemofilia y Condiciones de Sangrado
Privacy Policy

Privacy Policy

  1. What Information Do We Collect? When you visit our website you may provide us with two types of information: personal information you knowingly choose to disclose that is collected on an individual basis and website use information collected on an aggregate basis as you and others browse our website.
  2. Personal Information You Choose to Provide We may request that you voluntarily supply us with personal information, including your email address, postal address, home or work telephone number and other personal information for such purposes as correspondence, placing an order, requesting an estimate, or participating in online surveys. If you choose to correspond with us through email, we may retain the content of your email messages together with your email address and our responses. We provide the same protections for these electronic communications that we employ in the maintenance of information received by mail and telephone.
  3. Website Use Information Similar to other websites, our site may utilize a standard technology called "cookies" (see explanation below, "What Are Cookies?") and web server logs to collect information about how our website is used. Information gathered through cookies and server logs may include the date and time of visits, the pages viewed, time spent at our website, and the sites visited just before and just after ours. This information is collected on an aggregate basis. None of this information is associated with you as an individual.
  4. How Do We Use the Information That You Provide to Us? Broadly speaking, we use personal information for purposes of administering our business activities, providing service and support and making available other products and services to our customers and prospective customers. Occasionally, we may also use the information we collect to notify you about important changes to our website, new services and special offers we think you will find valuable. The lists used to send you product and service offers are developed and managed under our traditional standards designed to safeguard the security and privacy of all personal information provided by our users. You may at any time to notify us of your desire not to receive these offers.
  5. What Are Cookies? Cookies are a feature of web browser software that allows web servers to recognize the computer used to access a website. Cookies are small pieces of data that are stored by a user's web browser on the user's hard drive. Cookies can remember what information a user accesses on one web page to simplify subsequent interactions with that website by the same user or to use the information to streamline the user's transactions on related web pages. This makes it easier for a user to move from web page to web page and to complete commercial transactions over the Internet. Cookies should make your online experience easier and more personalized.
  6. How Do We Use Information Collected From Cookies? We use website browser software tools such as cookies and web server logs to gather information about our website users' browsing activities, in order to constantly improve our website and better serve our users. This information assists us to design and arrange our web pages in the most user-friendly manner and to continually improve our website to better meet the needs of our users and prospective users. Cookies help us collect important business and technical statistics. The information in the cookies lets us trace the paths followed by users to our website as they move from one page to another. Web server logs allow us to count how many people visit our website and evaluate our website's visitor capacity. We do not use these technologies to capture your individual email address or any personally identifying information about you.
  7. Notice of New Services and Changes Occasionally, we may use the information we collect to notify you about important changes to our website, new services and special offers we think you will find valuable. As a user of our website, you will be given the opportunity to notify us of your desire not to receive these offers by clicking on a response box when you receive such an offer or by sending us an email request.
  8. How Do We Secure Information Transmissions? When you send confidential personal information to us on our website, a secure server software which we have licensed encrypts all information you input before it is sent to us. The information is scrambled en route and decoded once it reaches our website. Other email that you may send to us may not be secure unless we advise you that security measures will be in place prior to your transmitting the information. For that reason, we ask that you do not send confidential information such as Social Security, credit card, or account numbers to us through an unsecured email.
  9. How Do We Protect Your Information? Information Security -- We utilize encryption/security software to safeguard the confidentiality of personal information we collect from unauthorized access or disclosure and accidental loss, alteration or destruction. Evaluation of Information Protection Practices -- Periodically, our operations and business practices are reviewed for compliance with organization policies and procedures governing the security, confidentiality and quality of our information. Employee Access, Training and Expectations -- Our organization values, ethical standards, policies and practices are committed to the protection of user information. In general, our business practices limit employee access to confidential information, and limit the use and disclosure of such information to authorized persons, processes and transactions.
  10. How Can You Access and Correct Your Information? You may request access to all your personally identifiable information that we collect online and maintain in our database by emailing us using the contact form provided to you within the site structure of our website.
  11. Do We Disclose Information to Outside Parties? We may provide aggregate information about our customers, sales, website traffic patterns and related website information to our affiliates or reputable third parties, but this information will not include personally identifying data, except as otherwise provided in this privacy policy.
  12. What About Legally Compelled Disclosure of Information? We may disclose information when legally compelled to do so, in other words, when we, in good faith, believe that the law requires it or for the protection of our legal rights.
  13. Permission to Use of Materials The right to download and store or output the materials in our website is granted for the user's personal use only, and materials may not be reproduced in any edited form. Any other reproduction, transmission, performance, display or editing of these materials by any means mechanical or electronic without our express written permission is strictly prohibited. Users wishing to obtain permission to reprint or reproduce any materials appearing on this site may contact us directly.
Terms & Conditions

Terms & Conditions

Donation Refund Policy

We are grateful for your donation and support of our organization. If you have made an error in making your donation or change your mind about contributing to our organization please contact us. Refunds are returned using the original method of payment. If you made your donation by credit card, your refund will be credited to that same credit card.

Automated Recurring Donation Cancellation

Ongoing support is important to enabling projects to continue their work, so we encourage donors to continue to contribute to projects over time. But if you must cancel your recurring donation, please notify us.

Powered by Firespring