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FAQ

¿Alguna vez has tenido una pregunta y no sabías dónde encontrar la respuesta? Si es así, has venido al lugar correcto.

Esta sección es una compilación de respuestas a las preguntas más frecuentes de nuestros electores. Simplemente comience siguiendo uno de los enlaces a continuación. Si no encuentras la pregunta que querías hacer, no dudes en ponerte en contacto con nosotros.

  1. ¿Qué son las condiciones de sangrado?
  2. ¿Qué es la hemofilia?
  3. ¿Son contagiosas?
  4. ¿Cuándo fueron fundados?
  5. ¿A quién sirve esta organización?
  6. ¿Puedo unirme a pesar de no tener condición de sangrado?
  7. ¿Cómo me convierto en miembro?
  8. ¿Es gratis?
  9. ¿Cuáles son los beneficios de unirme?
  10. ¿Dónde están ubicados?

  1. Si tienes una condición de sangrado, tu sangre no coagula correctamente. Esto podría ser debido a tener poco o nada de una de las proteínas o factores para que tu cuerpo logre hacer el proceso de coagulación de forma normal. Dependiendo de la condición será diferente la deficiencia de tu sangre. Conoce más en este enlace:
    https://www.hemophiliafed.org/home/understanding-bleeding-disorders/what-is-a-bleeding-disorder/

  2. La Hemofilia es una condición de sangrado que afecta mayormente a varones, ya que es una condición ligada al cromosoma X. La hemofilia afecta a 1 de cada 5,000 nacimientos y aproximadamente 400 infantes nacen con hemofilia cada año. 400,000 personas en el mundo viven con hemofilia y 20,000 de ellos viven en los Estados Unidos solamente. Todas las razas y los grupos económicos se ven igualmente afectadas. Las personas con hemofilia con acceso a terapias de reemplazo de factor, tienen una expectativa de vida normal.

  3. ¿Son contagiosas?

    No. Las condiciones de sangrado son usualmente hereditarias, los pacientes nacen con ellas.

  4. ¿Cuándo fueron fundados?

    A.P.H. fue oficialmente inscrita el 15 de noviembre de 1999. ¡En este 2024 celebramos los 25 años de fundación!

  5. ¿A quién sirve esta organización?

    Servimos a pacientes con hemofilia, von Willebrand y otras condiciones de sangrado, sus familias y a sus cuidadores. También servimos a la comunidad en general con educación sobre las condiciones de sangrados.

  6. ¿Puedo unirme a pesar de no tener condición de sangrado?

    Sí, gran parte de nuestros miembros son pacientes, sus familias, cuidadores y profesionales médicos, pero aceptamos también a individuos que no están directamente relacionadas a una condición de sangrado que deseen educarse y convertirse en aliado a la misión de APH.

  7. Llene este formulario. Es así de simple.

  8. ¿Es gratis?

    Sí es gratis; no cobramos una cuota de suscripción ni cobramos por participar en nuestros programas educativos.

  9. ¿Cuáles son los beneficios de unirme?

    Ofrecemos programas educativos, semanarios web, eventos familiares, campamento, literatura impresa, acceso a nuestro programa de asistencia a pacientes en casos de emergencia, representación en esfuerzos de abogacía, acceso a nuestro grupo de Facebook, ser parte de la gran familia de APH y mucho más.

  10. ¿Dónde están ubicados?

    En toda la isla de Puerto Rico. No tenemos oficina por lo cual nuestro trabajo se hace de forma remota y llegamos a cada rincón de la isla variando los lugares donde hacemos las reuniones y programas educativos.

Nuestro impacto en el año

  • 65+

  • Horas de voluntariado

    1,500+

  • Dinero recaudado

    $100,000+

  • Participación a los programas

    150+

© 2024 Asociación Puertorriqueña de Hemofilia y Condiciones de Sangrado
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  1. What Information Do We Collect? When you visit our website you may provide us with two types of information: personal information you knowingly choose to disclose that is collected on an individual basis and website use information collected on an aggregate basis as you and others browse our website.
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  10. How Can You Access and Correct Your Information? You may request access to all your personally identifiable information that we collect online and maintain in our database by emailing us using the contact form provided to you within the site structure of our website.
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Terms & Conditions

Terms & Conditions

Donation Refund Policy

We are grateful for your donation and support of our organization. If you have made an error in making your donation or change your mind about contributing to our organization please contact us. Refunds are returned using the original method of payment. If you made your donation by credit card, your refund will be credited to that same credit card.

Automated Recurring Donation Cancellation

Ongoing support is important to enabling projects to continue their work, so we encourage donors to continue to contribute to projects over time. But if you must cancel your recurring donation, please notify us.

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