#DeRojoPorLaHemofilia 2022 : Calendario : Noticias y eventos : Asociación Puertorriqueña de Hemofilia y Condiciones de Sangrado

Dona

Día Mundal de la Hemofilia

¡ Compra tu camisa roja y vistete #DeRojoPorLaHemofilia !

La Junta de Directores de la Asociación Puertorriqueña de Hemofilia y Condiciones de Sangrado (APH) invita a todo Puerto Rico a unirse a la campaña educativa “DE ROJO POR LA HEMOFILIA”. El día oficial de la campaña será el domingo, 17 de abril del 2022, día en que se conmemora el Día Mundial de la Hemofilia. La misma, busca concientizar sobre la existencia de esta rara condición de sangrado que afecta a cerca de 20,000 personas en los Estados Unidos. Por eso, el 17 de abril todo Puerto Rico se vestirá de rojo para concientizar sobre la hemofilia. “DE ROJO POR LA HEMOFILIA” además busca, brindar visibilidad a nuestros servicios y esfuerzos de abogacía en beneficio de los pacientes hemofílicos en la isla.
Queremos que todo Puerto Rico conozca sobre esta condición para así, enaltecer a estos pacientes que son unos verdaderos guerreros por naturaleza. Actualmente no existe la cura para la Hemofilia, lo que implica una vida de retos de toda índole para nuestros pacientes, sus familias y cuidadores. Más allá de los costosos tratamientos médicos que son vitales para promover una mejor calidad de vida, es necesario el apoyo, la empatía y la comprensión por parte de nuestra sociedad. Es aquí donde comienza nuestra labor como Asociación, siendo el ente que brinda una red de apoyo a estas familias

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Nuestro impacto en el año

Personas asistidas

65+
Horas de voluntariado

1,500+
Dinero recaudado

$100,000+
Participación a los programas

150+

NBDF
APH
Sanofi

© 2024 Asociación Puertorriqueña de Hemofilia y Condiciones de Sangrado

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