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Noticias y eventos

Calendario

VWD Retreat 2024

Sunday, September 22, 2024
10:30 am4:00 pm
AC Hotel by Marriott San Juan Condado

¡ATENCIÓN PACIENTES DE VON WILLEBRAND!
Acompáñanos en nuestro 3er encuentro educativo sobre #vonWillebrand, el próximo, 22 de septiembre de 2024 en el AC Hotel San Juan en Condado. Por tercer año consecutivo tendremos un evento exclusivo para cuidadores y pacientes de #vWD.
Asegura tu espacio lo antes posible. ¡Completa el registro aquí!
¡NO TE LO PUEDES PERDER!
#asociaciónpuertorriqueñadehemofilia #condicionesdesangrado #vwd

Contact Info
Daniela P. Ortiz
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Nuestro impacto en el año

  • 65+

  • Horas de voluntariado

    1,500+

  • Dinero recaudado

    $100,000+

  • Participación a los programas

    150+

© 2024 Asociación Puertorriqueña de Hemofilia y Condiciones de Sangrado
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Privacy Policy

  1. What Information Do We Collect? When you visit our website you may provide us with two types of information: personal information you knowingly choose to disclose that is collected on an individual basis and website use information collected on an aggregate basis as you and others browse our website.
  2. Personal Information You Choose to Provide We may request that you voluntarily supply us with personal information, including your email address, postal address, home or work telephone number and other personal information for such purposes as correspondence, placing an order, requesting an estimate, or participating in online surveys. If you choose to correspond with us through email, we may retain the content of your email messages together with your email address and our responses. We provide the same protections for these electronic communications that we employ in the maintenance of information received by mail and telephone.
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  7. Notice of New Services and Changes Occasionally, we may use the information we collect to notify you about important changes to our website, new services and special offers we think you will find valuable. As a user of our website, you will be given the opportunity to notify us of your desire not to receive these offers by clicking on a response box when you receive such an offer or by sending us an email request.
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  9. How Do We Protect Your Information? Information Security -- We utilize encryption/security software to safeguard the confidentiality of personal information we collect from unauthorized access or disclosure and accidental loss, alteration or destruction. Evaluation of Information Protection Practices -- Periodically, our operations and business practices are reviewed for compliance with organization policies and procedures governing the security, confidentiality and quality of our information. Employee Access, Training and Expectations -- Our organization values, ethical standards, policies and practices are committed to the protection of user information. In general, our business practices limit employee access to confidential information, and limit the use and disclosure of such information to authorized persons, processes and transactions.
  10. How Can You Access and Correct Your Information? You may request access to all your personally identifiable information that we collect online and maintain in our database by emailing us using the contact form provided to you within the site structure of our website.
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We are grateful for your donation and support of our organization. If you have made an error in making your donation or change your mind about contributing to our organization please contact us. Refunds are returned using the original method of payment. If you made your donation by credit card, your refund will be credited to that same credit card.

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Ongoing support is important to enabling projects to continue their work, so we encourage donors to continue to contribute to projects over time. But if you must cancel your recurring donation, please notify us.

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